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Profile picture for kjoed53 @kjoed53

As others have said, prednisone is a necessary evil in the beginning of a PMR journey and tapering too quickly is not a good idea. It might actually have the opposite effect. 20mg as a starting point is not too high. As Rosette said, your body weight has something to do with the effective dose. I was started at 15mg but had to increase to 25mg for any relief, but I'm 6'3" and 245#. Dropping from 20mg to 12.5mg needs to be done incrementally. The 5mg decreases every 3 weeks that my doctor suggested were too much for me so I did 2.5mg every 10 days. Your body will guide you.

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Replies to "As others have said, prednisone is a necessary evil in the beginning of a PMR journey..."

@kjoed53 thanks for the reply. Interesting as you say that every tapering experience is very different. I’ve had no symptoms for 4 days on 20mg which was used as the test to see if I actually have PMR. So I’m hoping that I can maybe go to 15 as a starting point and see how I go with that. It’s so odd that there is so much vagueness from the medical profession about this condition. No real definitive cause or even whether it’s actually curable! Weirdly the rheumatologist didn’t ask my weight…