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Pagets breast cancer right nipple..anyone have it?
Breast Cancer | Last Active: Sep 19 7:18pm | Replies (17)Comment receiving replies
I was born/raised in Baltimore. Johns Hopkins is the gold standard along with Mayo. I lived in SC when my 1st BG was diagnosed in 2002, in Philly when I was re-diagnosed in 2024.
My suggestion is to read (nothing before 5-10 yrs ago though) and google everything you can get your hands on. Get a 2nd, 5th, 10th opinion if necessary to have every concern of yours answered.
As a single woman who’s gotten this far on your own 2 feet, you are incredibly strong and can do anything necessary to advance your health. But also lean on a good friend or two to emote to when you need it. Pray if that is your bent or meditate. I have a spiritual advisor, a priest who I’ve known since 1994; we talk weekly…well to be truthful he mostly listens!
All of us in this BC sisterhood are with you in spirit!!!! And I think Hopkins’ social workers can help you find a reasonably priced (?) place to stay if needed.
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@mimi09 Thank you this is really helpful to read. It's daunting no doubt. I finished radiation in June. It's sad there is no treatment to prevent recurrence, but gosh you went a long time without recurrence. I am happy you got so many quality years after first diagnosis. My grade is 3 and I am HER2(3+), ER/PR negative, so I know my prognosis is worse than others and I know my recurrence rate is higher. I did try to establish a regular visit with a priest, but he seemed disinterested and kinda dismissed me, not wanting to even hear about cancer fears of death, etc. so I stopped going to that church. Now I just ry to pray the chaplet daily, and just go to another church on Sundays to feel a bit of hope faith for life after death. I do belong to 3 support groups with Mayo, John Hopkins, and they help a lot. I'm back to work, will always be single and living alone, and just hope for the best..whatever that is. For certain I know I will not take chemotherapy if it recurs, so I will just let go and let God at that time. Your message gives me more hope that I had yesterday. If I can even live 5 more years and take this long cross country train ride and do a few more things with my adult kids and family, that would give me peace in the end. wishing you peace