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I think I have PMR and I’m terrified
Polymyalgia Rheumatica (PMR) | Last Active: 17 minutes ago | Replies (81)Comment receiving replies
@stonewheel thank you!! I’ve been in full doom-spiral mode today and your message really gave me a huge lift . I’m doing 20mg for a few more days and then I see the rheumatologist again. My symptoms have improved dramatically although it’s a sort of mixed blessing as now I know I certainly have PMR!! I guess that’s the first bridge to cross. It’s so inspiring to have joined this support group and has totally restored my faith in the human race ! Thanks again and I hope to stay in touch and eventually start passing on positive encouragement to others who get this nasty shitty little condition !
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@martyn
"Then my doctor said, “Slow down buddy. We don’t want you taking that much for too long.”
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Thanks @stonewheel ---- Best advice ever! Stressing over it just adds fuel to the fire. You are relatively new ... how are you doing?
Everyone will be fine simply because we already know more than I did when I was first diagnosed. Take the prednisone... get PMR under control and into remission... then taper off prednisone. Just don't take prednisone too long but a couple of years at lower doses should be okay. The jury is still debating whether or not 5 mg or less does much harm.
https://www.everydayhealth.com/rheumatic-conditions/tapering-off-steroids-when-you-have-polymyalgia-rheumatica/