Kevzara has allowed me to taper off Prednisone after 3+ years of PMR. In the US Kevzara is only allowed for relapsing PMR patients, so my repeated tapers and resulting flares over a 3 year period qualified me — I’m not sure what is allowed in England. The original diagnosis of PMR was shocking to me as well, but the condition was SO agonizing that I was relieved anything could combat it. The more I learned, the calmer I became about this very unwelcome condition and I was particularly helped by the posts on this Mayo Clinic site.

Take heart as you learn more about it. Untreated
and prior to diagnosis was one of the worst times of my life, but treatment with prednisone and then Kevzara (a shot every 2 weeks rather than pills every day) has made life livable again. You have lots of fellow travelers.