← Return to Adjusting to life with temporal arteritis

Discussion
Comment receiving replies
Profile picture for maddboat02 @maddboat02

7 plus years diagnosed GCA via biopsies on both temporal region. I am not a believer of being diagnosed with GCA without biopsies as there are so many other issues that could exhibit same. I was not exhibiting “text book” symptoms. Although it was rough until diagnosed, infused monthly (x 5 yrs) Actemra was the best treatment for me. My insurance (Medicare + Capital Blue Cross) covered all infusions. No other drugs accompanied the infusions ie, Prednisone, or the other drugs mentioned in the various blogs. I am in remission (2 years) and getting routine blood work follow-up. Going off Actemra did not present any adverse reaction for me although it was tapered.

Jump to this post


Replies to "7 plus years diagnosed GCA via biopsies on both temporal region. I am not a believer..."

That's great to hear. I've been taking Actemra infusions for several months now and am attempting to taper off Prednisone completely. When I get down to 6mg, I begin having headaches again. My rheumatologist believes my GCA is gone since my inflammatory markers are normal. But it feels like it's still there to me, just being masked by the Prednisone.