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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: 3 days ago | Replies (721)Comment receiving replies
@jw9 thanks. Your observations are helpful. I was diagnosed about a year ago. I totally agree about Biotene! I will try the mouthwash. Do you have dental issues? Also started Restasis this year I think I am using less of the Refresh drops now.
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@eloise999
I have had Sjogrens since I was 31 and at 34 I had Stage II parotid gland cancer. So no salivary gland on that side, then radiation treatments affected my head and neck. But my radiation oncologist told me to use Phos Flur rinse, once at night and once in the morning. He said, You'll always have to do this. And I did, because I met all these people in the waiting room telling me, You'll lose all your teeth.
Phos Flur remains my favorite, it has the highest fluoride percentage. But it was hard to find. I have used ACT without alcohol of course, and now use Tom's with Fluoride which is mild on my mouth.
During Covid I wasn't able to get my twice a year dental cleanings. In fact I missed a year and a half. I don't know if it was just going to happen or that affected my mouth but I was shocked to find out I had periodontal disease. (Great, another disease?!)
So now I have to pay for periodontal cleanings and I go every 4 months. I've seen 2 dentists in the last 5 years. They both made grim pronouncements. But I keep to that plan, and as I described my homecare, I last had a cavity in 2003!! I really feel confident that I'm taking good care of my teeth.