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I think I have PMR and I’m terrified
Polymyalgia Rheumatica (PMR) | Last Active: 17 minutes ago | Replies (81)Comment receiving replies
Martyn,
You can make it. You will make it. Yes it's alarming to discover you have an auto immune condition you have never heard about it and yes it takes time to educate yourself about the condition but you will do all that and you will prevail. Glad you discovered this group so quickly--it will continue to make a difference to you.
Do ask about the new biologics, Kevzara in particular. Not sure about your coverage on National Health but if you can get on a biologic sooner not later you may be able to avoid the longish journey on and off steroids. Keep us posted on how you do.
Replies to "Martyn, You can make it. You will make it. Yes it's alarming to discover you have..."
Martyn, I’m 72, also an avid cyclist, skier, sailor, etc. Was diagnosed with PMR a few weeks ago (July 31) and like you had never heard of such a condition. I spent two weeks worrying intensely about my health and wondering if I’d ever get back to the activities I enjoy so much. Prednisone at 15mg for a week didn’t help, but after increasing to 20mg daily my pain gradually diminished (happened over two weeks for me, not within 24/48 hours as many people apparently experience). After a month of minimal physical activity I’m finally getting out for daily walks of about four miles and feeling significantly better - not back to full strength, but at least I can schedule social commitments and exercise. I’m learning to be patient and accept the need to manage my activities more carefully than previously. I’m wondering when my rheumatologist will start tapering - seems that will be my next step. Good luck to you! Paul
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@cwbf thanks so much for your response and positivity!! I will certainly be a regular visitor to this forum .