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I think I have PMR and I’m terrified
Polymyalgia Rheumatica (PMR) | Last Active: Sep 14 10:09am | Replies (109)Comment receiving replies
@jeff97 thank you Jeff. Your account is very inspiring, especially your betting to running. I’ve been surrounded by sport all my life and have all sorts of plans for long cycling tours once I finish work. Weirdly even when I have the horrible morning pain I’ve got on my bike and ridden relatively pain free for 30 miles or so (although no climbing!) .. I’m determined to listen to good advice and beat this thing. I read also about GCA and hope that I avoid that. But even reading your reply under you also had GCA and overcame that too.. you are a great example. Thanks
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@martyn
There is a PMR forum sponsored by a charity in the UK. You're more than welcome to remain here if you wish. The UK forum has some great people who share their personal experiences. There are a couple of people who give medical advice which doesn't happen on this forum so much.
The UK forum is PMRGCAuk. I liked most of the people on that forum. There was someone who went by the user name of Cycli who I really liked. He was an avid cyclist when he was diagnosed with PMR. I don't recall his real name but I think it was Geoff but I'm not sure of that. If you join the UK forum ask for him and tell him Mike "DadCue" from Iowa in the USA was wondering how he was doing. He might not remember me so just tell him I said Hi.
I miss the UK forum sometimes but the health care systems in the UK and USA are very different. I'm not a member of the UK forum anymore. I was told that my personal experience with a biologic to treat PMR wasn't pertinent in the UK by one of the experts on the UK forum.