← Return to I think I have PMR and I’m terrified

Discussion
martyn avatar

I think I have PMR and I’m terrified

Polymyalgia Rheumatica (PMR) | Last Active: Sep 14 10:09am | Replies (109)

Comment receiving replies
Profile picture for John, Volunteer Mentor @johnbishop

Hello @martyn, Welcome to Connect. It can be terrifying at first but the good news is that here on Connect you have a lot of folks that have experience with it and can be a great help to you for navigating what I like to call Mr. Ugly (PMR). There are alternative treatments but not sure I would want to manage it without steroids or an alternative medication. I've had 2 occurrences, six years apart and both treated with prednisone successfully but everyone is different when it comes to PMR, especially if you have multiple autoimmune conditions.

@dadcue posted a video in the following discussion that I found helpful if you want to learn more about the condition.
-- Comprehensive Overview Of PMR: https://connect.mayoclinic.org/discussion/comprehensive-overview-of-pmr/

I did have the weight gain side effects during my first PMR flareup taking prednisone but the second time around I was more aware of it and made a few lifestyle changes to help with that side effect - https://www.healthline.com/health/polymyalgia-rheumatica-diet. You mentioned a four day steroid test. Can you expand on that? What dosage of prednisone is used?

Jump to this post


Replies to "Hello @martyn, Welcome to Connect. It can be terrifying at first but the good news is..."

@johnbishop thank you John ..I just woke up in London, which is where I’m from, to an amazing bunch of replies to my post. Have to say it watered my eyes a little. It such a relief to hear from good caring people who have coped with PMR and have such positivity. I feel crazy like maybe I’ve overreacted but this all just feels so weird. The rheumatologist has prescribed me a dose of 20mg for the next five days so that he can then see if the symptoms improve drastically so that he can then conclude I have it . Strangely my blood tests were negative but he said 10% of PMR sufferers return negative blood tests. I will watch the link you provided. Thanks very much for your concern and support
😌
,