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Long Covid Help/Hope in 2026?

Post-COVID Recovery & COVID-19 | Last Active: 58 minutes ago | Replies (42)

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Profile picture for onpainsufferer @onpainsufferer

@vostie How long were you on LDN before you saw improvement. I’m six months on LDN and haven’t noticed any improvement at all. I’m being treated at a large university’s Covid Clinic and they recently changed me to sublingual since between GI inflammation for Long Covid, LDN side effects never diminished. I’m frustrated because they won’t consider other medications yet, focused only on LDN still.

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Replies to "@vostie How long were you on LDN before you saw improvement. I’m six months on LDN..."

@onpainsufferer LDN really started working for me about three months in at 3 mg but every long covid patient I have talked with is different. Some have relief at .5 and other had to go up to 6-8 mg.

I get better relief now at 5-6 mg per day. Take it first thing in the morning. It cuts my inflammation by about 50% (so much less pain) and after a year on LDN, I have much less fatigue and exercise induced malaise. I can walk about 7/20 of a mile every morning and have good energy if I practice extreme pacing (breaking tasks into smaller steps with lots of rest). I usually lay down about 1 pm and then have enough energy to get up at 4pm and cook dinner and converse with family. It is nothing like my precovid life but also nothing like the 1 1/2 years in bed post covid!

I get my LDN formulated at a compounding pharmacy into a pretty much tasteless liquid with no other additives like they put into the pills. I do not have any side effects unless I take it late in the day when it will give me insomnia.