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@jeff97
Thanks so much for responding and sharing, especially that the insomnia lessens as the dose tapers. That’s hopeful! Will be talking with rheumatologist on next visit about adding another drug.
Thanks again! Be well.

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Replies to "@jeff97 Thanks so much for responding and sharing, especially that the insomnia lessens as the dose..."

@liz26 I asked my rheumatologist for recommendations for the insomnia, and he didn't have any. I experimented and found that 5 mg of time release melatonin helped me to sleep 5 hours a night. I would be a little groggy during the day afterwards, but it was worth it to get some sleep. You could try a lower dose first, such as 1 or 3 mg.

Regarding another drug, I have had a very good experience with Actemra. It doesn't work completely for everyone, but it does for me. It's expensive though and isn't covered by some insurance plans. Tyenne is a different version of the same drug as Actemra, tocilizumab, and it costs a little less and seems to be covered by more insurance plans.