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Anyone have Sjögren's with seronegative labs?

Autoimmune Diseases | Last Active: Oct 4 11:01am | Replies (68)

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@lynda12345 I'm pretty sure I have it but same problem others have had, at 74 still not diagnosed. Have dry eyes, acid reflux, lips peel constantly, drink up to 40 oz of water durning the night etc. I have plugs in my tear ducts, helps with dry eyes but doctors said even if tested not much I can do but deal with symptoms! One thing I was always told I had celiac but tests were always negative since I don’t eat carbs due to high blood sugars but now there’s a blood test and I was very high for celiac. I guess since I went undiagnosed for 74 years I have developed all kinds of issues!

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Replies to "@lynda12345 I'm pretty sure I have it but same problem others have had, at 74 still..."

@saucy
I’m sorry to hear of your problems. Yes Drs are not sure what to do ? Sad
This is the invisible disease.
Acid reflux 🙁
For my eyes I use Theo Loz Duo eye drops 10ml size you can you as often as you wish no preservatives.
And sometimes i use Systane ointment at night
My Optomatrist was the first Dr that understands
Stress a big factor and watch what we eat. After showers apply baby oil when drying then add lotion or cream every where
Women Replens vaginal moisturizer I use once a week, use a nasal gel our eyes are connected to our noses. I know it’s frustrating but we need to be the experts here and educate family and professionals
Keep smiling