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Colleen Young, Connect Director avatar

Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: Oct 17 10:30am | Replies (1111)

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Hi pammyrose66 - my tumor was by my small intestine, removed with clean margins but high mitotic rate. I’ve been on imatinib since Jan 2026, and I’m still adjusting. Constant fatigue, nausea (controlled with zofran), brain fog, foot cramps and substantial hair thinning/loss are my side effects. My days don’t look anything like those pre-Imatinib, but I get by. How are you doing?

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Replies to "Hi pammyrose66 - my tumor was by my small intestine, removed with clean margins but high..."

@lmcjax - I'm having the same side effects from the Imatinib along with bad diarrhea. I didn't think of taking the zofran during the day - thanks!