@tammy65 I hear you loud and clear! I am very sorry to hear of how your life has changed... for the worse. Six years ago I was cycling 30-50 miles a week. Skiing several times a week. Working around the house, etc. My pain was well controlled with some drugs and a spinal cord stimulator. Then, suddenly, all my pain returned. No more cycling. Eve a pain pump has not helped. Be your own best advocate! Search for treatment options. Try non-invasive measures first. Then, more invasive treatments like spinal cord stimulator, pain pump, Dorsal Root Ganglion, among others. Don't give up. God may have extraordinary things in store for you, my friend.

@tammy65, it is simply a living hell. There is NOTHING that helps me. I have found its impact to be progressively worse after completing Folfirinox. The afternoons and evenings are infinitely worse, if that is even possible. My neuropathy is a basket of everything in my hands and feet. I find myself dropping things, losing my balance, and falling on occasion. The tips of my fingers are numb, while burning at the same time. Also, when touching anything, I feel electric shocks. The numbness from the knees down reaches a peak in the toes. I also think my left foot is beginning to drop. There is a feeling of swelling and sand at the bottom of the feet, particularly in the front. Driving is becoming problematic given the almost non-existent sensation, I am not sure how it all ends. Stan