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I've had Sjogrens Disease since I was 31 and I'm 68 now. I have posted this before: Wishing I had stock in Biotene products! They all work for me; mouthwash several times a day and always after I brush my teeth, I use the gel for mouth sores and Biotene spray anytime I wake up at night. Biotene gum is good and I use that when I'm out. So I always have some Biotene product on hand and it is pricey.

My Refresh eye drops are also pricey but I have been on Restasis RX eye drops for 2 years and this actually repaired scratches on my cornea. I'm less light sensitive and use less of the Refresh.

I took Plaqenil in the past, 1 tab and it didn't seem to have any effect. My current rheumatologist suggested I try 2 tabs and it has made a real difference for me with dry eyes and mouth. I don't have any side effects from it although I see here that many people do. I think I've taken so much medication and been through so much for over 30 years, that maybe I'm immune now!?

There's something I don't see listed by others yet; Brain fog is a part of my life. It waxes and wanes but is disabling. Nothing has helped that except rest.

I have taken a one hour nap every day for all these years.

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Replies to "I've had Sjogrens Disease since I was 31 and I'm 68 now. I have posted this..."

@jw9 thanks. Your observations are helpful. I was diagnosed about a year ago. I totally agree about Biotene! I will try the mouthwash. Do you have dental issues? Also started Restasis this year I think I am using less of the Refresh drops now.