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Does this sound like Long Covid?
Post-COVID Recovery & COVID-19 | Last Active: 34 minutes ago | Replies (35)Comment receiving replies
Wow I could have written this. My husband is exactly the same as yours! Since 2022. Same exact symptoms. All tests have been “normal”. Just went to tick borne illness clinic. They have started antibiotics and supplements to treat Lyme and co-infections while waiting for actual Lyme test results. It’s only been three days so no change yet. Still not sure if it’s long covid, Lyme or other tick illness or I guess possible mold or heavy metals. Maybe it’s some form of dementia
His brain fog and extreme fatigue are increasing I think. Still has anxiety and shortness of breath. These symptoms are so out of character for him. Type A personality, always up for anything, could do anything mechanical and was able to do math in his head. These traits are all gone. It’s so hard to watch him failing and I can’t do anything other than research. Hoping between tick clinic and long covid clinic next month we get an answer. Main stream medical has failed us.
Replies to "Wow I could have written this. My husband is exactly the same as yours! Since 2022...."
@bentstiks2, I, too, was a Type A go-getter like your husband, then came Long Covid in early 2021. After 4-1/2 years of various doctors and finally treatment at a Long Covid clinic, I saw improvements in everything except brain fog, memory loss and anxiety. They tested me for the biomarker for Alzheimer's and I was positive. With an extensive family history of dementia, I wasn't surprised. I was tested twice this year and am negative, but was told symptoms of brain fog/memory loss and early dementia/Alzheimer's are similar. My anxiety symptoms are exactly those of CFS/PEM. I now see my neurologist every 6 months for review and though I don't have dementia, am taking Aricept for brain fog and memory loss. It has been noticably helpful. Perhaps biomarker testing would confirm or deny your suspicion of dementia with your husband. The most frustrating thing for me after 5-1/2 years of Long Covid has been not knowing what's wrong and how to treat it. I've learned more from Google, YouTube, and this forum than from my doctors. Wishing you the best for resolving your husband's issues. It's a struggle, but many of us are right there with you.
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@bentstiks2
Which doctor is testing for Lyme disease?
Would he have all those other symptoms though if it was “just” dementia?