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@raintylerI'm so sorry to hear that the lack of care you've been receiving has caused your health to deteriorate. It's happened to many of us of this forum. I strongly recommend you see someone who specializes in bronchiectasis and NTM. There may not be such a person in your community or even your state so you may need to travel. If at all possible I suggest National Jewish Health in Denver. They are the leading experts. People from literally all over the world with respiratory problems find their way to NJH. But going there can be expensive considering that the first visit will be a week or more long. (Though there are ways to do it without spending too much.) In that time, however, you will get exemplary care and learn everything you need to know about your disease and how to treat it. You do not need a referral to be seen there. If interested, there is lots of info on this forum about what goes on there, where to stay, etc.

If you can't make that trip there are other institutions around the country, called respiratory Centers of Excellence, that treat NTM and bronchiectasis. You can search this site for something near you. Or let us know where you live and someone on the forum can help you out.

Wishing you good health and the best of luck!

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Replies to "@raintylerI'm so sorry to hear that the lack of care you've been receiving has caused your..."

@coffcoff
Thanks for the suggestion but I am on the east coast and Denver wouldn’t be feasible. I am trying to get my PCP to complete the required referral to Johns Hopkins NTM and BE clinic. I live equal distances from Baltimore and Philadelphia (2 to 2 1/2 hrs).