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Diagnosed with sarcoma? Let's share
Sarcoma | Last Active: 2 days ago | Replies (1111)Comment receiving replies
I was diagnosed with Dediferentiated liposarcoma in July after 4 months of tests and scans. Then a 1 month wait to see an oncologist. Between the surgical oncologist and the radiation oncologist they have decided that radiation before surgery is my best option. I start 25 radiation treatments on mon. 24 of August. I am a 67 year old male in generally good health.my tumor is rapidly growing in the uper right quadrant of my groin just below belt line.
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@fluttergord
An update. I have finished the 25 radiation treatments. And am now healing for surgery. They will do a mri of groin, and a ct scan of lungs. Before my visit with the surgeon oncologist in a month. So far side effects have been limited to skin irritation and sensitive areas. Have not had to use pain killers at all. Now to keep my mind positive during the wait.
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@fluttergord
Hello, sorry to hear about your diagnosis. I too am 67 and was recently diagnosed with epitheiold sarcoma (they think) and similar to your timetable you mentioned. Mine started with an aggressive growing tumor in my upper thigh that metastasized to lymph nodes, and lung.
I did 10 rounds of radiation that did wonders on the tumor in my upper thigh, now I am starting another 10 rounds focused my my pelvic area. There is a major lymph node called the lilac in the groin area they are focusing on to reduce the swelling in my leg.
Also, just completed 6 rounds of chemo, gemcitabine & docetaxel, only to find out the cancer actually grew during this period. If they recommend these 2 chemo, just beware that the efficacy on sarcoma is less than 30%. Hoping my experience is of value. Wishing you the best. Joe