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Colleen Young, Connect Director avatar

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 5 hours ago | Replies (6963)

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@joshb24 Welcome to the group. Sorry you joined under less than ideal circumstances. Like you, I didn't even know that there was such a thing as idiopathic Polyneuropathy. I went for an emg back in 2024. I had lower back pain and was trying to mitigate it. I've had a pain pump since 2023 but it has never helped. A few months after the EMG, i began to feel like I was walking on rocks. Today I still have the back pain along with pain radiating down both legs and into my feet. I am taking more meds than I can count. Nothing seems to help. But, it is important to keep a positive attitude. New treatments are being developed all the time. This world is just our temporary home. Heaven waits for those who call God their heavenly father.

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Replies to "@joshb24 Welcome to the group. Sorry you joined under less than ideal circumstances. Like you, I..."

@heisenberg34 thank you for reaching out ! Yes we are but dust .. I continue to navigate best I can praying for new research to bring all of us relief from this mystery disease ..