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Profile picture for mffox @mffox

From the previous comments, it sounds like physicians are taking a variety of approaches to using IV antibiotics. My first experience was in 2002 when I did 6 months of twice a day (5 days a week) Amikacin for MAC (along with 3 oral antibiotics). A PIC line would have precluded swimming, so I argued for a “port” inserted in my chest wall. I’m an RN so I knew how to access the port …. I doubt this would be an option for others. It got rid of the MAC.
In 2023 I did 3 weeks of every 8 hours Ceftazadine (2 mg) for resistant pseudomonas. I had a Midline (lasts longer than a PIC) inserted, self-administered at home, with a dressing change once a week at the infusion center. The plastic sleeve worked ok, with rubber bands. (It’s not the end of the world if a dressing gets a little damp.). The pseudomonas wasn’t eliminated but I was much improved. I repeated this routine once in 2024, twice in 2025. My Infectious Disease specialist prescribed and supervised all of these treatments. This spring a new pulmonologist suggested nebulized Tobramycin, twice a day for 28 days, then 28 days off. I’m now on my third cycle with amazing results…. I don’t cough up anything!!! I expect we will do a sputum specimen next month and perhaps be able to stop treatment.
Ask a lot of questions, work with an ID doc as well as a pulmonologist and be prepared for a long haul. Bronchiectasis is a major nuisance.

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Replies to "From the previous comments, it sounds like physicians are taking a variety of approaches to using..."

@mffox you mentioned producing a sputum next month …is there an easy way to produce a sputum ?
Thank you . Kay B.

@mffox
I completed 16 months of the big 3 in March and has a bronchoscope and found pseudomonas. I see the infectious disease doctor in two days and my lung specialist thought it would be a two week IV along with or maybe later date oral antibiotics as well. I did not have any resistance on my last bout of antibiotics so hoping good results for the IV.
I will probably be in cyprofloxin. Has anyone experienced any side affects? I also have bronchiactasis so hoping this round of medicine will help with the mucas and cough am having.