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← Return to Day 4 of prednisone and happy! Stay at 15 or go up to 20?
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Day 4 of prednisone and happy! Stay at 15 or go up to 20?
Polymyalgia Rheumatica (PMR) | Last Active: 4 days ago | Replies (72)Comment receiving replies
Ok, so now they are reducing my pred from the 30 it was increased to, and then to 20mg. Just put it down to 17.5mg. After the first 24 hours I slept 20 hours on the second day of taper!! Extremely exhausted all the time. A very little bit of the PMR symptoms started back, too, but my doc said to keep on the 17.5mg although I will probably 'feel like crap' for at least 2-3 weeks! Anyone else have this type of medical advice? Why do I need to 'feel like crap'? FYI - I was prescribed Kevzara right at the beginning of my treatments, but the prescription is still 'lost' at the specialty pharmacy after 8 weeks... any ideas on how to get a specialty pharm to work!?
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@sbgigi I've been taking Actemra for 2 years, so I have a lot of experiencing dealing with specialty pharmacies. It's strange that they haven't processed your Kevzara prescription. Kevzara and Actemra are really expensive, so specialty pharmacies should be eager to help you. Could there be a problem with pre-approval with your insurance? What is the pharmacy telling you about the problem? Would it help if the doctor resubmitted the prescription?
Google says Kevzara is like Actemra in that it can take several months to build up to full strength in your body. So the sooner you start taking it the better.