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You Can Shape the Future of Mayo Clinic Health Research: Become a Community Expert Aug 24 1:15pm | By Jasmine Souers (@jasminesouers)Comment receiving replies
@jasminesouers As someone whose life has been turned upside down by autoimmune disease, I was dismayed to see it left out of most/all of the questions. The incidence of autoimmune diseases has skyrocketed upward, but doctors and treatments have remained flat. So much research needs to be done in recognition, diagnosis and treatment of known and unknown diseases. Patients need to feel that diagnosis and treatment are available where they live and not only in large medical centers at a distance.
I hope that autoimmune disease ( AD) will get the recognition it, and the patients, deserve.
Replies to "@jasminesouers As someone whose life has been turned upside down by autoimmune disease, I was dismayed..."
Thank you for raising this, @becsbuddy . Autoimmune disease is included in the CE Studios application under General Conditions. The updated application includes an expanded range of condition selections, with some conditions grouped within broader categories rather than listed individually. We appreciate the feedback and will continue to consider whether those categories can be presented in a way that makes it easier for participants to identify where their condition is represented.
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@becsbuddy I agree. Long COVID was not on it either, which I believe to be an autoimmune illness and the reason I joined this community.