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Chronic kidney disease (CKD) support: Introduce yourself and connect
Chronic Kidney Disease (CKD) | Last Active: 2 days ago | Replies (111)Comment receiving replies
Hello, I'm a 19 Year old female with stage IV CKD. I'm looking for information on what diet I should be on or if there's some exercise or something I should be doing. I was just recently in the hospital for six days and doctors sent me home, they don't know what to do next.( I have been to the hospital recent times already.) My condition is really severe at the moment. I cannot sit up without getting a severe headache and can move only to a extent because of severe back and neck pain. I have a high blood pressure and have to Limit potassium and salt intake. Otherwise, doctor did not give me much of anything I should be doing for the end stage of stage IV. Well, I was in the hospital. They were going to put me on dialysis then my creatinine came down a little bit. So now I was sent home to do what I don't know.????
A few of my diagnosis are hEDS, POTS, MALS, MAYTHERNERS, Juggler vien COMPRESSIONS, cystic ovaries. (only to name a few,) .....
Replies to "Hello, I'm a 19 Year old female with stage IV CKD. I'm looking for information on..."
@raehost Ask your nephrologist if there is a nephrology nutritionist that you can see, who will recommend a diet based on your specific situation. Mine has recommended no salt, and very little animal protein.
@raehost welcome to Mayo Clinic Connect. Wow you have a lot going on in your list of diagnoses. Is it overwhelming? I have a suggestion that might be helpful. Since you were recently hospitalized do you have any discharge or follow up instructions? (name &/ or number of who to contact if you have further problems, concerns or questions) You could contact that provider for an appointment. Ask for help in prioritizing your various conditions and also for referrals to applicable specialists. If it turns out that your CKD is the place to start find a nephrologist & dietician who knows renal nutrition. My suggestion could help you break down your situation into smaller more manageable steps towards learning and caring for yourself.
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I have been following the
Mediterranean diet. No sugar and lots of water.
I saw a Nutritionist who provided list of yes and no
Of food. Especially watch
Potassium and Phosphorus.
Prayers