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DiscussionExperience with National Jewish Health?
MAC & Bronchiectasis | Last Active: 9 hours ago | Replies (46)Comment receiving replies
Replies to "I live in New York so I'm very interested in how you navigate getting to NJH,..."
@vstankie I live in NY also. I have been to NJH seven times in last 20 yrs. We always flew. Last trip, my lungs collapsed on the plane. I needed oxygen the entire time. I could not fly back, We drove.
NJH sends you lists of places to stay. We always choose Staybridge on Colfax. Also, a map of streets,etc.
Yes, you really need a car. There is free time, and weekends. Most hotels have shuttles to NJH, but then what do you do the rest of the time?
NJH helps you with anything you need to know. There are plenty of places to eat, stay, and shop, if feeling ok.
We always rented a car at airport.
Twenty yrs ago, I had strength, no oxygen, and I wasn't very sick at all. I had two NTMs then, Had surgery in NY 2 months before, and no one here knew how to treat what I had. NJH saved my life. If my doctor says go, that;s where I'll go!
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@vstankie Have you looked into Mount Sinai in NYC or NYU Langone.
If I am not mistaken Mount Sinai is directly hooked up with NJH.
NYU Langone has a good program there for Bronchiectasis patients from what I understand.
Had you checked them out?
I did go to NJH and was pleased,. I am in Oklahoma and until recently there wasn't anyone up to snuff here with Bronchiectasis. OU Medical Center is building on the need for greater attention to patients with Bronchiectasis.
Barbara