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Small fiber neuropathy

Neuropathy | Last Active: 8 hours ago | Replies (8)

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Hi Patricia,

I'm so sorry to hear you also deal with SFN. It is an incredibly challenging condition to live with. Chronic pain is no joke. Like you I am also idiopathic with no known cause at moment. I am currently on Lyrica (Pregabalin), Zoloft and LDN. I did not want to take an antidepressant but at the time this started it was critical that I did.The pain was so severe I did not know how I could live with it. Zoloft helped me to deal with it. I am hoping to get off of it at some point because it has caused a great deal of weight gain along with Lyrica. Antidepressants don't work for everyone but I think in critical situations they are a lifesaver even with their side effects. I tried R Alpha Lipoid Acid but it bothered my stomach so I discontinued it. I do take Magnesium Glycinate in liquid form every night as it helps me sleep along with Melatonin. The one thing that has made the biggest impact on my ability to be functional is LDN( Low Dose Naltrexone). If you haven't tried it this might be an option for you? It is a compounded medication so you need a compounding pharmacy to get it. What moved me the most about your message is that you have continued to exercise despite the pain. While I am active I am not exercising the way I should and this is something I really need to follow through with. My doctor says "Movement is medicine" which I truly believe but it is easier said than done when we hurt. Reading your message has reminded me that I need to do it, I need to build a stronger body especially given that neuropathy causes balances issues. The stronger we are the more we can deal with the risk of falling. I hope that you continue to find ways to feel less pain! I agree watching movies is a great way to get things to "calm down". It is great to have this forum so we can connect with others to share our experiences!

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Replies to "Hi Patricia, I'm so sorry to hear you also deal with SFN. It is an incredibly..."

@nycami thank you for your info