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@marceen
Good info thanks. I lost my brother to esophageal cancer, no symptoms, dx too late.

My PCP once told me, I always learn something new from you. That’s because I have a lot of rare disorders so I was forced into research. Two years later she told me I belong at UCLA or Mayo because my medical history is too complex and local providers just don’t have the time. Great, thanks. I do have several specialists at UCLA and more at various health systems. It’s a full time job to be my own case manager and attend all the appointments. The whole bone issue is just one slice but an important one I can’t ignore anymore.

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Replies to "@marceen Good info thanks. I lost my brother to esophageal cancer, no symptoms, dx too late...."

@californiazebra
Exactly!!!!! As one get's older there is a feeling that the patient is sluffed off - they are going to die soon anyway. Pretty cynical but these days a lot of their profits go to the insurance process and the staff in my endo doc's office is larger than the actual doctors......I can understand that.

There is a web site that you can see how much your doc makes - the extra stuff like lectures on a cruise, or dinners, or other stuff from the big pharma reps. These are the women clunking down the hallway with the sample suitcase.......you can search by name. By accident, I typed in the wrong city and some plastic surgeon's name popped up in so cal. Well, just by these additional functions he was getting 100,000 dollars a year.

The stuff "behind the curtain"...................There is a parathyroid surgery center in southern calif that is good too. I went to Forida and had a Harvard "and" Yale surgeon to take out the tiny parathyroid.....they were so so good and sent me a file with pictures (normal parathyroid is the size of a pea - mine was an inch wide).........anyway, I sent them two award winning wines from Oregon.....nice to be nice on both ends.....