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Who is managing your bone health, oncologist or endocrinologist?
Breast Cancer | Last Active: 1 hour ago | Replies (46)Comment receiving replies
@marceen
Love your home science experiment. I agree that doctors don’t like when you present info that doesn’t fit their standard narrative and they don’t know how to respond. My cardiologist recently told me I was really overthinking everything but then deeper into the conversation agreed the med he was trying to give me would be dangerous for me. I’ve had too many bad experiences to not do my own research. No one has more time to spend on your specific case than you do! Every body is different and we are the premier expert on our own body.
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@californiazebra
Ha. The small things count - like the pth test in the blood (if it shows the extraction of calcium "from" the bones, there is a problem.
I do a REMS test every year for my bones......it is different from the dexa but no radiation and besides I am not going to take meds (for now anyway. - I am stable)
I was with the Osteostrong group for a year......just a small group that exercised....not in all cities.
And one of the ladies was going to a doctor or naturpath. The way she described it was that the doc yelled at her and said "she" was the one to tell her what blood tests and supplements to take.....well, she is changing doctors....
In oregon we have a teaching hospital and they have a library (OHSU) that is open to the public and actually the librarians will do a specific search for you (even as a basic person). The thing about that is that there are so so many studies that you have to use the right key words.
I took two weekend courses with the National Medical Librarians.........this was one of the smartest groups I have ever been in. (my partner had esphagael cancer - well they never did an endoscopy till it was too late (large providence hospital) . I would give the oncology doc 3 research studies in paper form at every visit (just a quiet hand-off - no conversation) .....at the very end he actually told me that I showed him things he did not know (such a humble thing to do - american docs just strut down the hallways) Bla, Bla...............