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Can sed rate and c reactive results be normal while taking Prednisone?
Polymyalgia Rheumatica (PMR) | Last Active: Aug 28 11:03am | Replies (41)Comment receiving replies
@miluna I'm on my second taper for GCA after a flare a few months ago. I'm at 6 mgs and yesterday I could barely function. I have good days and bad days, yesterday was the worst. My bloodwork is overall stable except for the usual high white blood cells and absolute neutrophils, CRP and ESR normal. I know how you're feeling and I'm sorry. I never imagined this for my retirement having been healthy my whole life. We will get through this, takes a lot of patience I know but there is a light at the end of the tunnel. Wishing you well.
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@kobellava Hi, I’m sorry to hear about your struggles with GCA tapering. Your comment about being healthy all your life and never expecting retirement to be like this, struck a cord with me. l feel the exact same way! I have always been strong and healthy too. Seven months into retirement I received the unwelcome gift of PMR.
With my tapering, I struggled at the 6 mg point and bumped back up to 6.5. Then tapered down to 6 and then 5 . At 5 I had to go back up to 5.5. I’m finally back down to 5 mg and doing better than the first time around. From here forward I will never taper more than a half a milligram at a time despite what my rheumatologist would like. At this lower dose a 1 mg drop a month is too painful.
I hope you find the dose that makes things bearable. I’ve only dealt with PMR, so I don’t know what it’s like to have GCA. Truthfully I hope I don’t find out either. I have put off any major travel plans until I feel I have a better grip on this.
May a pain-free retirement be in your future soon. Best of health always.