← Return to Day 4 of prednisone and happy! Stay at 15 or go up to 20?

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Profile picture for p0rtia @p0rtia

Update: End week 1 at 11.25. Up and down week--or rather, down and up. Troubling aches the first few days of the week, but the last 3 have been glorious. Stressy days correlate with more noticeable aches. Planning to sit on 11.25 for a few more weeks. I learned a ton this week.

Thoughts:

1. My taper log is priceless info.

2. I've been waking around 4 AM lately, and have been surprised to discover I'm in a lovely pain/ache-free zone. Shoulders like...normal...and happy. Hips not an issue. Then I doze/sleep, and by 6 AM the place on my upper arms labeled PMR starts to make its presence known. Not bad, but I get the message.

3. I think I finally got it sorted out in my head why I had those two painful days last month on the highest stress days of the summer: Need for cortisol to help out exceeded available cortisol/prednisone. I conclude that my adrenal glands are most likely effectively suppressed.

4. I sit on in my garden when I can these days, doing slow-motion arm PT. It's very peaceful, and I fancy I can feel my poor muscles relaxing and "breathing" in healing ways. NB: I used to describe my PMR, before I had heard of PMR, as "It's like a climbed a Rocky Mountain yesterday, and today I ache and just want to rest and recover. Except I never recover; it's like that every day." The bod really likes not feeling like that; I'm lucky to have to time to relax and let the accumulated muscle stress flow away. That's what it feels like, anyway.

5. No side effects so far. I've cleared a new supplement plan with all my docs, hoping to keep the worst at bay as I search for my lowest effective dose.

Excelsior

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Replies to "Update: End week 1 at 11.25. Up and down week--or rather, down and up. Troubling aches..."

@p0rtia look into pool PT. Pool walking is great low impact. Forwards, backwards, sideways, leg crossovers. Hold the rail and raise your knee 15 and repeat with other leg. You get my drift. It’s been my savior.
Pool was my stress reliever, fresh air. Ask a friend to keep company.