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Profile picture for kujhawk1978 @kujhawk1978

Useful post with valuable resources underpinning it.

As I say in other posts, this is a very heterogenous cancer, a very heterogenous patient population, the same could be said about the medical community.

As the articles you provide point out, there is science in our decisions, knowing that allows us to ask graduate level questions of our medical team during consults.

However, the science runs into the art of medicine as other have pointed out. If you ever served in the military you are likely familiar with the saying "no plan survives contact with the enemy..." They also say the enemy has a vote in the outcome.

Then there's statistics. I had surgery in 2014, when the catheter came out, zero incontinence, still don't. Nerves were spared and I recovered erectile function, still have it.

Flash forward 18 months, BCR followed by SRT, radiologist warns about the possible impacts on nerves, bladder...I acknowledge.

and, drum roll...nothing!

Kegels, never did a one.

I'm not bragging, gloating...I do appreciate the science in the post and individuals considering surgery should absolutely read and ask questions in their consult with prospective surgeons.

I'm just saying, you (I) start with the science, move to the art of medicine, then there's statistics, Bell Curve, Standard Deviations, Mean, Average...

Aim high in your treatment choices, understand you and your medical team might not hit the target.

Kevin

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Replies to "Useful post with valuable resources underpinning it. As I say in other posts, this is a..."

@kujhawk1978 I have had a similar experience. No incontinence even early after the catheter came out. I wore pads for a couple of days, but they were dry, so I stopped wearing them. The nurse who removed the catheter gave me some links to YouTube Kegel videos. I watched them, tried them a couple of times, but found I didn't need to do them so I stopped.

Did the surgeon do the Retzius procedure? To be honest, I don't know. I just wanted the damn cancer out ASAP and was ready to accept incontinence if that happened. I went to a top-notch hospital and had a top-notch surgeon and left that in the hands of the team.

i know the statistics and can't promise anyone will have this outcome, but it's certainly possible.