@burchindy I can only speak for myself but I'm pretty sure there's no typical timeline and a lot of it could be related lifestyle, diet, exercise and any other health conditions that join you on your life's journey. I ignored it for the first 45 years when I first noticed it in the toes in my late 40s. I didn't worry much because it didn't impact my life other than some mild discomfort. Then when it had progressed into my lower legs in 2016 I setup an appointment with a Mayo neurologist and was diagnosed with idiopathic small fiber PN which I pretty much already knew I had but was looking for treatment to slow/stop the progression. I was disappointed that there really was no treatment that would help me and came to Connect to learn more about the conditions and what others have shared.

I was in poor physical shape and overweight so I first started working on that by daily exercise and eating healthier with a focus on removing as much sugar from my diet as possible for a cookie monster to do.🙃 Since I started back in 2016, it has helped with my symptoms but not eliminated them. The Foundation for Peripheral Neuropathy has some good information to get you started if you think it might help - https://www.foundationforpn.org/lifestyles/.