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Large fluid retention after RARP
Prostate Cancer | Last Active: 11 hours ago | Replies (26)Comment receiving replies
@johnzzz I am so sorry you are living through this situation. It is very interesting to me that your case and my case both occurred at Mass Gen Brigham. My doctor, Adam Kibel, is one of the best robotic surgeons in the world, and Dr. Steele is one of the preeminent open surgeons in the world. Both work at Dana Farber/Brigham and Women's. With Dr. Kibel telling me a lymphocele only happens to <1% of his patients, I bet Dr. Steele has the same low occurrence rate, but it is disturbing that both of us were treated at Mass Gen/B&W. I recommend you ask Dr. Steele or your radiologist if sclerotherapy is the path they will pursue is the 300-400cc per day does not go down soon. That was my path. I was at over 600cc, then down to 400-500cc after two weeks, so they started me on sclerotherapy. It is pretty simple. They inject an antibiotic into the drain after removing as much fluid as they can. The antibiotic helps to shrink the capsule that is collecting the fluid. I went once a week for 5-6 weeks. My total journey from drain insertion to removal was 56 days. During the first sclerotherapy session, they also inserted a larger drain tube to help it drain more fluid. I had a VNA nurse 1-2 times a week to change the drain site dressing as it got very smelly as it the fluid escaped around the tube. I wish you the best. I would be interested in what explanation Dr. Steele gave you.
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I really appreciate your input. I almost ended up in ER about 15 minutes
ago... For the 3rd time in two weeks. The original drain they put in fell
out after about a week. It just literally fell out. Ended up in the
emergency room at Brighams with acute pain because of the build-up of
fluids around the bladder and pelvis area. The radiologist put in a more
perminant drain. They extracted more than a liter of fluid. Ended up
staying the next couple of days. Had another scare about 15 minutes ago
when the sodium chloride sulution wouldn't pass through the tube going into
the stomach. Something was stuck. I called up mass general Brigham
healthcare at home. Services. They suggested. I go to the emergency
room,... Again. Luckily I was able dislodge whatever was blocking the tube.
I'm at my wits end. I had a couple of options on how to proceed with the
cancer. after researching Dr Steele I figured he was my best bet. I'm kinda
regretting that decision but it's too late now. It hasn't been quite two
weeks since the drain was put in. But the accumulation of liquids hasn't
abated at all. 400-500 cc's a day. I'll give it another week or so and if
nothing changes then I'll start raising hell. Also, after the Foley
catheter was removed( for the second time) the incontinance became an
issue. haven't quite got control my bladder yet. Well thanks again swen77.
Appreciate the input. Good luck!