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Years of chronic GI distress - what else to do?

Digestive Health | Last Active: Aug 27 11:49am | Replies (22)

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@jacqincalifornia Great questions! Thanks! I've had many colonoscopies and all seem normal (except for 2 hemorrhoids); and yes, I did have one following that colitis attack a few years ago. All was fine. However, I am remembering now a dr telling me that I had a tortuous colon. I've not had any breath tests nor motility studies. I have received a lot of blank stares from doctors over the years when I ask about those! LOL

Taking the Benefiber the last six months (plus 1 cup of prune juice at night), has worked well for me. Felt like it was life-saving from so many years of suffering.

I should also mention that I am going on a trip (train, plane and bus) in a few weeks and am scared to death about going to the bathroom in public (regularly in the morning and any painful events that may occur); so I remembered that the dr over the years had mentioned about taking Miralax, a small dose regularly. I took a small dose on Friday and one on Saturday. I had awful stomach upset Sunday afternoon. Did I take too much? Trying to find something that works to "poop on demand" while I'm on this trip!

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Replies to "@jacqincalifornia Great questions! Thanks! I've had many colonoscopies and all seem normal (except for 2 hemorrhoids);..."

@cardinal26 From a fellow tortuous colon sufferer - I feel you, lol!

It's pretty hard to overdose on Miralax. My GI doctor has told me to go ahead and take two doses in a single day if need be. Whether that will give you the control you're hoping for on your trip I don't know.

You didn't say if your primary care doctor has been handling everything or if you have a gastroenterologist. It sure sounds like a gastroenterologist would be a good idea for you.

@cardinal26

I am so sorry you are going thru this. I too get blank stares and downright refusal for certain tests. I worry about travel and even short outings for lunch etc. I try to stick to my routine for constipation, eat lightly etc and travel with my bag of wipes, depends, clean undies etc. I gave had some rough times on vacation and thanks to an understanding husband and friends and my emergency kit have made it. I always know where bathrooms are. I wish u the very best in travel comfort.

@cardinal26
Miralax can cause constipation for some people. Miralax takes fluid from the body to work and if your body doesn't absorb enough fluids Miralax can cause constipation. Some people's bodies has problems absorbing plain water. For me I get constipated if I use Miralax because my body doesn't absorb enough fluids.
Eating doesn't bother my symptoms. I have short bowel syndrome. I still can get constipated or have diarrhea but it's not related to what I eat.