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Years of chronic GI distress - what else to do?
Digestive Health | Last Active: 9 hours ago | Replies (3)Comment receiving replies
Can you say more about what's been tested so far? You said negative for Celiac. Have you had a colonoscopy, any scans (CT or MRI), any other labs or tests?
There are so many possible causes and directions to go with what you've shared so far. Have you ever done a breath test for intestinal bacterial overgrowth? Have you had any motility studies?
The autonomic nervous system is another possible area to investigate because it is very involved in bowel motility. Various types of dysautonomia can cause some of the problems you're having. Do you have any documented conditions that may not seem immediately relevant to gut function, but could be - diabetes, neurological conditions.....
When you passed bloody stool, was a colonoscopy done? How was the gastroparesis diagnosed?
I'm sorry for what you're going through. I am many others here can relate to these kinds of difficult issues.
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@jacqincalifornia Great questions! Thanks! I've had many colonoscopies and all seem normal (except for 2 hemorrhoids); and yes, I did have one following that colitis attack a few years ago. All was fine. However, I am remembering now a dr telling me that I had a tortuous colon. I've not had any breath tests nor motility studies. I have received a lot of blank stares from doctors over the years when I ask about those! LOL
Taking the Benefiber the last six months (plus 1 cup of prune juice at night), has worked well for me. Felt like it was life-saving from so many years of suffering.
I should also mention that I am going on a trip (train, plane and bus) in a few weeks and am scared to death about going to the bathroom in public (regularly in the morning and any painful events that may occur); so I remembered that the dr over the years had mentioned about taking Miralax, a small dose regularly. I took a small dose on Friday and one on Saturday. I had awful stomach upset Sunday afternoon. Did I take too much? Trying to find something that works to "poop on demand" while I'm on this trip!