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@sepdvm
Husband is scheduled for neobladder robotic surgery on September 17th. History of BCG treatments with recurrence high grade Stage 2 with invasion of bladder wall. Next step was chemo. He had 4 treatments and they canceled his last treatment due to an upper respiratory infection requiring oral antibiotics. He is 72 years old, very strong willed and self-disciplined. Other than bladder cancer he is healthy and active. What made you decide on the neo bladder procedure as opposed to other treatments. What were the complications that you mentioned. Do you have any regrets in any of your decisions. What did you find the most difficult?

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@ronniek My husband had much experience in his business with various stoma patients and did not want to live with a urostomy. He is very glad that he chose this route even tho he must self catheterize 3-4 times a day. He had an initial abscess 10 days postop that ruptured and then had urine draining from his incision at this site. A trip to the ER and great doctor there speaking with clinicians at Mayo who suggested proper scans and then a trial of increasing balloon pressure of Foley catheter which controlled the leak. He had a closure of one ureter/neobladder junction which required nephrostomy tube placement and repair. He had a large incisional hernia that had to be repaired and a smaller one later on. He has had the appearance of stones on scans, but when attempts were made to remove these surgically they couldnt be found. our first 2 years after his neobladder surgery were challenging but he is not regretful. I think the worst part for him was having hiccups continuously day and night for almost 2 weeks after surgery. We remedied that once he returned home after hospitalization.