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Profile picture for janetilley @janetilley

My Sed Rate and C Reactive were always normal. While my primary doc put me on Prednisone , the second so-called specialist gave me an aggressive reduction rate which I could not do so I resisted, went at my own pace and did what gave me less pain. His sense was that I didn’t have PMR, it was a mistake I was on it and he wanted me off Pred fast. He decided it was something else but he didn’t know what ! I KNEW it was PMR based on everything I read on this Mayo Connect site. He finally admitted that it was PMR. But still berated me for getting information from the internet! He knew best!! Turns out he did not. That said, 17 Months later I was fine and out of pain. And off Pred.

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Replies to "My Sed Rate and C Reactive were always normal. While my primary doc put me on..."

@janetilley

It is worse when doctors equate pain levels to how high or low our inflammation markers are. There isn’t any way to verify the amount of pain we should experience solely based on inflammation markers.

Pain is purely subjective and can’t be objectively measured. That rate your pain from 1 to 10 is the most ridiculous thing that was ever devised. It is better than nothing though.

Chronic pain is different than acute pain. I told my rheumatologist that PMR was my “normal pain” and was tolerable.

A flare of PMR was an abrupt uptick of severe pain that had to be stopped and it wasn’t tolerable. I didn’t care what my inflammation markers were when PMR was suddenly worse.