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judimahoney avatar

I Am Reeling, Again đŸ˜Ș

Caregivers: Dementia | Last Active: 12 minutes ago | Replies (25)

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Oh boy! @judimahoney this IS a lot to add to your daily life. I know I feel similarly whenever he has a doctor’s appointment and we add another medication, therapy, daily activity, etc. into my already packed (and at times overwhelming) routine. Seriously?? I also know that with time and practice, somehow I always seem to make the modifications and add that “one more thing” into the mix. Sometimes it means stopping something else that is no longer useful or is now a lower priority. But in your case, this additional burden at meals x 3, every day, is a bit much, for sure. I support others comments that getting some additional help, even if it is only a few times a week could be beneficial for you. Also, I have learned that sometimes medical professionals give you ALL the information and advice that sound great on paper but don’t always translate to your situation. With some time and practice you may find some ways to streamline the processes to make it more efficient and still be effective for your husband’s health and needs. We have incorporated daily practice virtually with the Parkinson’s Voice Project, this has helped him immensely with strength in his voice and swallowing. It is free and anyone can join. We started this after he completed his in person sessions with the speech language pathologist. It’s 30 minutes a day and I can really see a difference when he doesn’t do it for a few days. He is much harder to understand and he has more choking episodes with his food. It might be something to consider if it could be helpful in your situation.
Blessings on your journey

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Replies to "Oh boy! @judimahoney this IS a lot to add to your daily life. I know I..."

@mm180
Thanks, some great suggestions.
I have been thinking about a care person, but since there would be several hours between meals at this point it's more feasible to take him to respite care when I feel the need for a break (it's happening tomorrow). His respite care facility offers Rock Steady Boxing designed for Parkinsons patients. He doesn't have Parkinsons, however the exercises and strength and balance moves are great for any senior.
Thanks for your message. 😊