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@kjc48
Good morning and thanks so much Karla. 🌹
We are attending weekly speech and language pathology appointments and getting the professional assistance we need from the therapist, as well as vital info from the internet and the IDDSI website (for dysphagia).
I lay in bed thinking of ways to make this easier, and I did buy some extra, small storage containers so I can freeze things like mashed potatoes and gravy for a quick thaw and heat and eat.
Anyway, we are always needing to stay one step ahead of this lousy game. I will call in some troops if need be, and I do take him to respite care once or twice a month as needed. He exercises there, gets some socialization and is amenable to attending; yippie and that's a win in my book.
Thanks again for staying in touch and your kind words. 🤗
Replies to "@kjc48 Good morning and thanks so much Karla. 🌹 We are attending weekly speech and language..."
@judimahoney My H just had his first appointment with a speech therapist. I had no idea why the neurologist referred us. I thought maybe because he speaks softly & mumbles, or maybe his choking. I had to stay in the car and join the appointment over speaker phone, which wasn't ideal, but I was sick, I had to drive him and he's the one that got me sick, so there we are. The doctor was very nice and was very accommodating to the fact that I had to join on speaker. I had no idea that he would do additional cognitive testing, always welcome, as I like to keep up with results each time there's a cognitive test. So, he will be going for cognitive/linguistic therapy.
We also have an upcoming pulmonary appointment that I'm hoping will bring his coughing & choking to light. I can't seem to get any interest in his coughing & choking. I'm certain that it is has to do with dysphasia.
We'll see.
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@judimahoney If anyone knows how to do this - and deal with the continuing changes of this disease - you do. Please take care of you, too! Best, Karla