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Who is managing your bone health, oncologist or endocrinologist?
Breast Cancer | Last Active: 3 hours ago | Replies (20)Comment receiving replies
@prarysky
Thanks for your reply. Great response. You captured our frustrations and the disconnects. Like you, I feel my oncologist should have a better way of dealing with the common side effects of breast cancer treatment and read up on them even if he ultimately refers me out. I need him to understand what these harsh meds do to us.
I also agree that they do not read the notes from other specialists. I’ve found many doctors don’t even keep up with their own notes and try to prescribed meds for me that I’m allergic to as noted in their files.
When you said you can’t take oral meds due to reflux, are you talking about for bone health? Which ones? I’ve been on a PPI for reflux for at least a dozen years.
All the meds for osteopenia and osteoporosis seem scary!
Replies to "@prarysky Thanks for your reply. Great response. You captured our frustrations and the disconnects. Like you,..."
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@californiazebra Sorry for the confusion. I meant that because of my prior history of reflux (GERD), I would not want to take Fosamax or any of the oral bisphosphonates. I believe they can cause a flare up of reflux symptoms so want to avoid that. My reflux symptoms were coughing and difficulty swallowing so there's no way I want to return to those problems. Those symptoms eventually improved and I no longer take medication for it. My go-to treatment for reflux was a supplement called L-Glutamine which I took faithfully for years. Learned about it from Dr. Sherry Rogers, an integrative health doctor.
If you chose a bisphosphonate, I think oral would be safer because it's not as intense a dosage as the infusion forms like Reclast or Zometa.