@taly
Hello! Keeping good thoughts for your upcoming surgery! I was diagnosed in 2020 with Stage 4, Grade 3 SBNETs - same location as yours. IMO, you are so very fortunate to have caught this early on and fingers crossed it will be confirmed Stage 1.

When I met with the NET surgeon/team at UIHC, he almost didn't perform surgery - I did point out from what I read and understood, I was only 2 points 'into' Stage 3 (lol) and fortunately he and the tumor board agreed surgery was an option for me. Ileum, gallbladder removed along with some liver mets and as many of the tumors in the mesentary he could safely reach. The 2 small tumors found in the intestine which Drs believed were the primary site(s) were also removed. It took about 1 year for my digestive issues to find a new normal, and as long as I watch my diet, take pre-probiotics, OTC pancreatin, and get my monthly Lanreotide shot, life w/NETs is pretty darn good!

(@dadcue): As far as "predictions" go , well.... we all hope things will go as planned, lol. Also, I hope you choose to accept surgery. After recovering from the extensive surgery, my gastro issues pretty much stopped! I am sure in my case finding the 2 small bowel tumors (primaries) is why I'm still on the right side of the grass 6 years later and holding at "stable" (oh! I also chose to have PRRT tx several years ago due to mild progression). Prognosis in 2020 was "possibly 2 years'"....