← Return to getting back to normal after ADT

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getting back to normal after ADT

Prostate Cancer | Last Active: 7 hours ago | Replies (53)

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Profile picture for corin @corin

To answer your question about having a hard time getting back to normal, the answer is YES. I, too, share many of your side effects. After 10 months on Abiraterone , 9 months Elligard and 1 month Orgovyx, I was having so many heart events that my doc stopped the treatment and is having me see a cardiologist prior to the next step. My PC is aggressive. Gleason scores 9 throughout. Positive lymph nodes on PSMA PET. In the three weeks I've been off all ADT, my sleep has improved 100%. No more heart events (waking up throughout the night feeling like my heart has stopped.... death dreams with significant clarity... out of breath walking up stairs...etc...). In the three weeks I've been off all ADT, my mental health has improved significantly. The heart issues and mental health have been my biggest concerns. I think we can all appreciate the hot flashes, insomnia, exhaustion and sadness in our change of circumstances, but for me the pervasive heart issues and overbearing depression suggested I needed further intervention. I hope that you're on the best path for you. I'm sorry you're enduring this struggle.

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Replies to "To answer your question about having a hard time getting back to normal, the answer is..."

@corin
Abiraterone It’s very hard on the heart. It gave me high blood pressure, Five afib Events and many hot flashes.

It is not appropriate at all for somebody with heart issues. I had not had an afib event for 15 years before starting Abbie. I’m getting an echocardiogram tomorrow and I know the reason I have to do it is because I was on that drug for 2 1/2 years.

Nubeqa Works really well all by itself most people. I know a lot of guys in their late 70s and 80s that are on Nubeqa Alone and they are doing quite well. It’s suppresses testosterone’s ability to work with the prostate cancer.