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Profile picture for silversurfer51 @silversurfer51

Thank you, Susan. Definitely unsettling just 3 days in here. I'm sure you know the feelings we are going through. In answer to your questions... Yes, going to Mayo in Jacksonville. My wife and I were both born and raised there and now live down in Flagler County. My appointment on Wednesday is with Dr. Doonan (hematology/oncology). I also have an appointment at Advent Palm Coast with Dr. Sai (also hematology/oncology) on the 25th. I was originally referred to Dr. Sai by Dr. Alvaro Martin (Advent Daytona Pulmonologist) who did my biopsy a week ago. I originally called Mayo for two reasons; I wanted a second opinion, and I wanted an appointment sooner than the 25th. We'll see what path this takes but I would be happy for Mayo to run things in consult Advent so that maybe some treatments can be done in Flagler without driving to Jax. I also have an appointment with my Dermatologist tomorrow at the suggestion of Dr. Martin to bring her into the loop and get a good body scan. I will try to update you once I have my appointment Wednesday. I am open to any advice or comments as this is all brand new to me. Thank you for all the info you provided. I appreciate you for taking the time. By the way, I turn 75 in 8 days, and we have a short weeklong vacation planned to celebrate which we will cancel if the Dr. says we should. Oh... almost forgot. Yes, I am set up on the Mayo Clinic Patient Portal.

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Replies to "Thank you, Susan. Definitely unsettling just 3 days in here. I'm sure you know the feelings..."

@silversurfer51: Happy birthday to you! I also have a milestone birthday coming up next week - my big birthday gift this year: a new hip! LOL.

I hope you get to go on your vacation and that you're pleased with your appointment with Dr. Doonan. I've heard only positive reports on him. I don't know if they can arrange treatment in conjunction with Advent; I've not heard of that type of arrangement but definitely something worth inquiring about. Great step in getting your portal set up.

There is a lot to consider when starting treatment for metastatic melanoma and obtaining a second opinion is a good way to start by exploring options; I'd done the same thing. You can also consult this guideline which may help, as put out by an organization I've found to be particularly helpful during my own journey: https://www.curemelanoma.org/patient-eng/ten-tips-for-people-just-diagnosed-with-melanoma/choosing-your-doctor

Am I correct that you're about a 90 minute drive to Jacksonsville?