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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 2 hours ago | Replies (6915)Comment receiving replies
Hi, my name is Shannon and I have autoimmune mediated polyneuropathy caused by Ts-Hds and Am trying to connect with others who have this form of it. In addition those who have found relief through modifications of lifestyle or just a great support group locally. I live in Michigan and this chronic pain from doing the minimal is so disturbing and defeating and Im currently on IVIG. Please help or guve resources if you can. Im grateful that I dont look sick but more and more I feel terrible with burning and pain which makes me more tired amd cause isolation.
Thanks in advance
Replies to "Hi, my name is Shannon and I have autoimmune mediated polyneuropathy caused by Ts-Hds and Am..."
Hello Shannon @znanny, I would like to join @ray666 welcoming you to Connect. I think there are several members who have posted about TS-HDS antibody and polyneuropathy in the following discussion. I posted a few references I found in the first few posts in the discussion below also.
-- TS-HDS Antibody and Small Fiber Neuropathy:
https://connect.mayoclinic.org/discussion/ts-hds-antibody-and-small-fiber-neuropathy/
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Hi, znanny (@znanny)
I just want to say welcome! My neuropathy is very different, but I wanted to at least acknowledge your message. I see you sent it three hours ago. It's a typically sleepy Sunday. I know that as the new week gets underway, you'll begin to get replies from folks who suffer a neuropathy similar to yours. Just for now, though …
Cheers! And again welcome!
Ray (@ray666)