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What tests should be part of a surveillance protocol for lung NETs?
Neuroendocrine Tumors (NETs) | Last Active: 1 day ago | Replies (38)Comment receiving replies
@californiazebra was your Dotatate negative or positive?
Replies to "@californiazebra was your Dotatate negative or positive?"
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@amyschwietz
My DOTATATE scan was negative because they determined I don’t have somatostatin receptors needed for that scan. The octreotide still works to treat my lung NETs and DIPNECH though. It has slowed tumor growth and managed my respiratory symptoms. I am monitored with CT scans with contrast. I did have a regular PET scan recently. Things are going well.