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Husband has unexplained chest pains, doctors unable to diagnose
Heart & Blood Health | Last Active: Oct 2, 2017 | Replies (13)Comment receiving replies
Hi, Casey. I know you are having a rough time with whatever this is. However, you two are not alone. Let me suggest a couple of things. First, have your PCP order a few things relating to protein misfolding and depositing. Start with a 24 hour protein in urine, looking for protein. Any is too much. Then a Bindings@ Serum Free Light Chain search for Protein. Any over the reference level is a first-order disorder, and a killer. A pain in the sternum could be heart, or arthritis. A pain in the shoulder, front or back or side, or from the shoulder to the sternum, is most likely a diseased spleen, perhaps swollen, infected, or invaded by amyloid. Are you close enough to Mayo-Rochester to go there? or Sloan-Kettering, or Mass General or Brigham & Womans, or City of Hope? Is breathing a problem? Don't pay any attention to the O2 numbers, just any sense of shortness of breath. Make sure the medicos do a CT of the brain cortex, and the heart. Measure everything, especially the cardiac v-walls and the amorphous deposits (starchy stuff) in the brain. Pay attention to the thyroid, and especially the goiter. If there is one, it is probably amyloid, and causing the pain. Upper GI? Barrett's Esophagus? Pancreatic cancer? A-Fib? Tachycardia? Of all these, my guess would be eosinophilic problems(coughing or gagging), amyloidosis (Brain deposit or goiter), or spleen (left side). Liver or kidney would be next. Where exactly is the pain?
Replies to "Hi, Casey. I know you are having a rough time with whatever this is. However, you..."
Casey, separate to the potential of a medical problem, what is his sleep pattern.?
Back again, Casey0595. A few more thoughts. First, Very few tests actually rule anything in or out, such as the organs, nerves, etc. Nearly all just move things a little closer to the point. And many tests must be your own observation. i.e., About urinary protein. When he pees into the toiled, directly into the water and not against the toiled wall, does it make a foam or froth on the water? Make more than maybe ten bubbles that last more than a few seconds? Have fresh urine in a catheter or into a glass container that looks cloudy? Bubbly?
Bloody? Clotted with blood? If so, that is protein in the urine. Does he bruise easily from injections? Does he get bruising around the eyelids? Red swelling around the nose bridge? Red or purple dots anywhere that last weeks or months? Black toes, anything from speckles to whole toes that last weeks or months? Gain or lose more than 5 pounds in a day? Know when his heart flutters or skips a beat? have tachycardia at about 153 rpm? have discolored skin on lower arms or legs? Does that skin look furrowed like a plowed field? Does his sight appear to be looking through rippled water? have trouble swallowing? Cough a lot? His voice changing? Little patches of plowed field skin can grow on the larynx or tongue or bladder or lungs, etc., and cause all manner of problems. Have dandruff the consistency of toothpaste? Have electric shocks running along any nerves, even cardiac sensori-motor nerves. These are the kind of signs that can really give a good doctor some grist to chew on. THEN the doc can get a brain scan and look for deposits around the cerebral cortex, not Alzheimers. Or many other things.
He usually wakes up between 6&6:30am. He falls asleep between 11-12
Hello @pastorray,
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He had a CT with contrast of his neck to his pelvis, with no abnormal findings. Would that rule out any potential spleen, heart, etc. issues? Or is there another test specifically? He's had several urine tests with no protein in the urine. Is there another test he can have to test for that? We have an appointment with Mayo Clinic in Jacksonville (we live in Atlanta so that is the closest one to us). Thank you so much for taking the time to reply & all the info. We appreciate it greatly!