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Hi! @californiazebra:

I am so sorry to learn of your suffering "coverage" issues of medicare, for it seems unnecessary; sorry...

I am no expert, but I can only share my own experience during my journey of BC with medicare coverage as an example. When I first met my medical oncologist back in January, 2024, he prescribed one of "AI" medications for me because my pathology report from surgery showed highly ER+ (>95%), PR+, and Her2- cancerous cells; he also worked with the endocrinologist in the same cancer center and prescribed Zometa infusion every 6 months to prevent the spread of cancer to my bone. When he checked my previous medical record and found out that I already had osteopenia before the BC diagnosis, he then ordered DEXA scan to monitor my bone health. It is true that AI medications may worsen BC patients' osteopenia cases into osteoporosis, this is the reason that medicare allows ER+ BC patients to have yearly DEXA scan. In my personal case, Medicare covers Zometa infusion, DEXA, and all. I am saddened that you seem to be "caught in between" 2 specialists regarding Medicare coverage, for fighting BC is bad enough for any patients:( Are your oncologist and endocrinologist working in the same hospital by any chance? Surely they can work together to look out for your bone health. Perhaps you may look for a reliable cancer center with a good reputation to provide overall care for you on the journey ahead?

I am so sorry for such a lengthy note, Zebra, sincerely hope it helps somehow...

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Replies to "Hi! @californiazebra: I am so sorry to learn of your suffering "coverage" issues of medicare, for..."

@lifetraveler
Thank you for your response. I think my endocrinologist just needs to know the Medicare coverage rules that are specific to breast cancer and why zometa may be preferred over Prolia for a BC patient. The bigger issue is disagreeing on the treatment. I really think they need to have a chat. My endocrinologist is great and treats me for other issues so he’s a keeper. My oncologist is local but part of UCLA and I need him to be in that system to coordinate with other UCLA providers for my neuroendocrine lung cancer since he provides the injections for that locally saving me monthly trips to Los Angeles. I just really need to know which provider can better manage my bone health given the BC. Not sure if my oncologist is passing the buck since his office would provide the Zometa infusions. I have so many specialists it drives me crazy when they each say x is not my area. The oncology and endocrinology offices are not far from each other. I’m going to send my oncologist a message to order DEXA and have a chat with endocrinologist if he is expected to handle my case. Yes, I wish I had one multidisciplinary team on my case but too many unrelated disorders for that. Thanks.