← Return to Long Covid Help/Hope in 2026?
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Replies to "I also had Covid in March of 2020 and have sloughed through a very painful and..."
@vostie I too thought LDN was my "miracle" -- I titrated up to 2.5 and felt great. But I got Covid again in January 2024 and I was back to square one with the debilitating fatigue and energy crashes. I went to Dr. Hurt at Mayo, Rochester. He said in their LC research, they found that LDN quits working in people who get Covid again. I still take LDN but still have crashes when I don't pace and get plenty of sleep.
Has anyone on her asked about new research results from Mayo Rochester?
@vostie How long were you on LDN before you saw improvement. I’m six months on LDN and haven’t noticed any improvement at all. I’m being treated at a large university’s Covid Clinic and they recently changed me to sublingual since between GI inflammation for Long Covid, LDN side effects never diminished. I’m frustrated because they won’t consider other medications yet, focused only on LDN still.
@vostie please, what is LDL? I had Covid in 2021 and hospitalized for 3 weeks. I am not the same and share so many of the symptoms. You have or had. I am practically bed ridden with fatigue, now Vertigo. I have tried functional medicine with little relief, but continue to seek help. Thank you
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@vostie I just started LDN and I started at 4.5 mg. That was my Doctors order. I’m having night sweats. I was taking it in the morning and it made me sleepy so I moved it to the evening. With the night sweats I tried moving it up to 4 PM. But I’m still having them. Did you have night sweats and did they get any better? I’ve been on it 2 weeks.