I also had Covid in March of 2020 and have sloughed through a very painful and debilitating 6 years. But three years ago, I found a doctor that was open to treating covid and proactively called a long covid specialist ( whose practice was full) for me. We ended up with a list of about 13 possible treatments as each one of us long haulers are respond differently. We tried antivirals first and nothing made any of my symptoms better. Finally, we tried LDN and it substantially helped. I started at 1.5 mg and increased 1.5 mg per month to a final dose that I take now of 5 mg. I did have side effects to begin with - vivid dreams (not nightmares), sleepiness if I took it in the morning followed by insomnia when I took it at night followed by no sleepiness when I then started taking it in the morning again, and for a short period of time, I feeling of anxiousness a few hours after I would take it that slowly went away.
LDN has vastly improved my life...I have more energy in the morning to early afternoon and less breathlessness and malaise after exercise so I can walk 7/10 of a mile everyday. I have about 50% less pain from inflammation if I am careful to stay away from foods covid made me allergic to and only on rare occasions do I have bouts of fluctuating blood pressure and blood oxygen.
For me, starting higher levels of HRT helped with the heat and cold intolerance but did not stop it. When my stress is high, I am up drinking cold water only to then freeze for an hour before getting back to sleep.
And covid lowered my vitamin d levels substantially so supplementation has helped my sleep and overall energy.
I still have significant malaise for days if I do not practice extreme pacing. Just going over my small energy allotment for the day will put me down for two days but it is much better than before and I rarely get palpitations now. I am in the Scripts trial using GLP1 for long covid and it has worked for a few. I am seeing more and more studies on microdosing so will be trying that next with my doc. The full dose given for weight loss and diabetes appears to be too strong for most long haulers while microdosing seems to help with inflammation in the body and the brain...so we will see!
@vostie I just started LDN and I started at 4.5 mg. That was my Doctors order. I’m having night sweats. I was taking it in the morning and it made me sleepy so I moved it to the evening. With the night sweats I tried moving it up to 4 PM. But I’m still having them. Did you have night sweats and did they get any better? I’ve been on it 2 weeks.