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Pmr and no drugs

Polymyalgia Rheumatica (PMR) | Last Active: 2 hours ago | Replies (36)

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Profile picture for ga29 @ga29

@kjoed53 I am also on a low-dose; rheumatologist started me at 8 mg back in January 2026, because I have osteopenia, and even on that low dose I ended up with a bilateral (both sides of the spine) fractured sacrum in May. One of the most painful injuries I have ever had to overcome, it is still healing. I’ve been on a walker ever since. I had to have a sacroplasty, which is using bone cement on the breakage - because I could not put any weight on my right leg.
He is Trying to get me off of the prednisolone, first with methotrexate - seven tablets weekly, which caused no real problems but no help either, and now my second infusion of Kevzara every 2 weeks. I am hoping that works. The side effects I’ve noticed from that injection last week was it made me feel very sick for a couple days, in bed with increased pain. I am praying that both can help me get off the steroids which has had such terrible effects on my bones. I am slowly recovering.
I am also very allergic to drugs. I have a long list of allergies that have built up over the years, one being NSAIDS. I used them for my arthritis pain for many years before my back problems were diagnosed. The end result was severe diarrhea daily, if I took even one ibuprofen. Be careful with all drugs!
If you can control your PMR with diet and natural supplements, I would recommend that. All the best to you all. I am thankful for all of the comments in this community.

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Replies to "@kjoed53 I am also on a low-dose; rheumatologist started me at 8 mg back in January..."

@ga29
I'm sorry that you are going through that. You started at a disadvantage because of your osteopenia. You probably should have been started on kevzara from the beginning while also taking calcium and D3 supplements. Hopefully there are better days ahead for you.