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Anybody diagnosed with microscopic colitis?
Inflammatory Bowel Disease (IBD) | Last Active: 2 hours ago | Replies (502)Comment receiving replies
@lpockat Mine was controlled after a few months at one 3 mg/day. At 15 mo I tapered that off to one every other day and then every third; half life of Budesonide is only a few hours so shouldn't make a difference, but ehh. It took about 2 weeks for the skin on my arms to thicken, along with applying a thick hand lotion to arms after showering. Some of the neoprene and latex arm sleeves help with gardening; fewer bruises and scratches. Consider checking with your GI to see if there is anything else that can help with your symptoms. My CC was triggered mostly by stress and poor sleep; I already was on a restrictive diet with gluten free (celiac) and other intolerances. If you can find a nutritionist knowledgable about collitis, that might help too.
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@kayabbott I forgot to mention that the Budesonide I take for the CC also helps the back pain I have. I've had 2 major back surgeries, a metal cage, spacers between vertebra, a medtronic device with battery pack implanted, and three fractured vertebra that had concrete injections a year ago. This is an ongoing 15 year problem (I'm 72) The Budesonide, I discovered, really put a dent in the pain from my back when I was on three a day. Not sure I want to quit completely. Think I'm going to try 1 and 2 pills every other day. Trying to stay away from taking Motrin. I feel like this is a game I have to figure out. I think my CC was caused by a medication trying to get rid of MRSA. Right on the info sheet, it said it can cause colitis!! I had trouble right away. I don't think the Dr.s believed me. I've been pretty good for over a year which also involved surgery to take out a diverticulitis section in the colon. That was really making me sick- and I actually fired the Dr. that kept putting off taking out that infected area. I did it right in the hospital- in front of nurses! I was hospitalized three more times before I was healthy enough to do the surgery! We do have to take charge and stand up for ourselves sometimes! Thank you for taking the time to send me the message.