← Return to sero negative sjogrens?

Discussion
theodora21 avatar

sero negative sjogrens?

Autoimmune Diseases | Last Active: 37 minutes ago | Replies (35)

Comment receiving replies
Profile picture for jw9 @jw9

@seronegative49
I consider autoimmune diagnosis to be very "slippery," meaning it won't stay in the box. Just like our symptoms are usually always in flux, it depends on who you see and when you see them what will be apparent for a diagnosis. It's why we have to keep seeing new doctors hoping for answers. It's why I went for almost 20 years before getting a diagnosis of seronegative RA. And now, 15 years later it looks like I really have Psoriatic Arthritis!? Changing autoimmune, autoimmune in flux.

A friend saw the rashes on my forearms and asked me if they know what I'm allergic to? I told him, I'm allergic to myself! It's autoimmune!

Jump to this post


Replies to "@seronegative49 I consider autoimmune diagnosis to be very "slippery," meaning it won't stay in the box...."

@jw9 I agree with you - "slippery" is a great description. 40 years ago my diagnosis was fibromyalgia. 10 years later it was seronegative Sjogren's, then 15 years ago MCTD, now back to Sjogren's but with Lupus markers showing up. And of course the psychologizing along the way delayed any serious efforts at appropriate treatment. We are still in the dark ages of understanding autoimmunity. But getting better, I hope.